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Transitioning Patients from Pediatric to Adult Care

One way to improve health outcomes for youth with special health care needs is ensuring that they successfully transition from pediatric to adult health care. Health care providers help with this transition by ensuring youth:

  • Understand their changing health needs
  • Take more responsibility for managing their own care
  • Identify appropriate adult health care providers
  • Maintain insurance coverage

National resources

Got Transition
National Health Care Transition Center for families supporting youth and young adults to access health systems as new health care consumers.

PACER's National Parent Center on Transition and Employment (Health & Transition Section)
A young person’s health is critical to his or her overall well-being. Good health provides a solid foundation for success at home, work, school, and in the community. As children become adults, families must determine how a young person’s health care expenses will be covered once they are no longer covered on the family policy or by a children’s health care program. Many families also experience the challenge of transitioning from a long trusted pediatrician to a new adult health care provider.

American Academy of Pediatrics: Developmental and Behavioral News: “Six Tips for Helping Parents Advocate for their Child Care”

The Culturally Sensitive Individualization of Services and Supports
Information on Cultural Reciprocity and how providers can assist with transition planning when working with diverse families.

The National Alliance to Advance Adolescent Health
National initiatives in education, research, policy analysis and technical assistance in support of health outcomes for adolescents and the infrastructure changes needed to achieve them.

Simons Foundation Autism Research Initiative: Study aims to capture autism's transition into adulthood
A new study in the UK looks at young adults who are diagnosed with Autism Spectrum Disorders and the transition from pediatric to adult health care.

In Minnesota

Youth and Young Adults Planning for the Future
Minnesota Department of Health Transition Resources

Minnesota Department of Employment and Economic Development
Employment options for youth and adults with disabilities

Disability Minnesota
Programs, products and services devoted to disability issues in Minnesota

Resources for families and young adult consumers

  • HealthCare.gov
    Health Care coverage information for Young Adults
  • “Voicing My Choices”
    Advance Care Planning Guide for Adolescents and Young Adults. For families with children with serious illnesses; gives a way for children to communicate their preferences to caregivers.
  • “Keeping and organizing Medical Records”
    Information for family members, youth and young adults on what health care records and information to keep and bring to medical appointments
  • “What does Health Have to do with Transition? Everything!”
    Benefits and strategies for including Health in the Individualized Education Process
  • Person Centered Planning: A Tool for Transition
    Using Person Centered Planning to assist teenagers and young adults plan and prepare for transitions.
  • Honoring Choices
    Resources to encourage health care conversations including health care directives and end of life decisions.
  • Health Care Directives
    Fillable forms for patients to pre-plan health care decisions. Developed collaboratively and reviewed by the Honoring Choices MN Advisory Committee and is available in English, Hmong, Russian, Spanish and Somali.
  • Health Hobbies
    Students with disabilities give insight on hobbies that they have to help them stay healthy.